ANALYSIS FACTORS RELATING TO QUALITY OF LIFE ADOLESCENTS WITH THALASSEMIA IN BANYUMAS Alifka Deti Sri Maharani, Siwi Pramatama Mars Wijayanti, Sri Nurlaela, Dwi Sarwani Sri Rejeki
Universitas Jenderal Soedirman
Abstract
Background: : Quality of life adolescent Thalassemia important to study because it is genetic disease last a lifetime and can cause blood disorders,organs disorders and psychosocial problems. Adolescents are transitional phase where psychosocial needs are very important. This study aims to determine the value of quality of life and factors related to the quality of life of adolescents with thalassemia in Banyumas with the PedsQL instrument.
Method: Quantitative analytic with cross-sectional study design. The population was adolescent Thalassemia who resided in Banyumas. Sample of 72 respondents with the total sampling method. Data were collected by visiting the respondent^s house and conducting interviews by filling out questionnaire. Data analysis used SPSS with univariate, bivariate (chi square),and multivariate (logistic regression) statistical analysis.
Results: The quality of life of adolescents with thalassemia in Banyumas is classified normal with PedsQL value of 77.16>65.48. There is influence between family support (p=0.043), father^s education (p=0.031), motherl education (p=0.037), family income level (p=0.012), and a history of splenectomy (p=0.010) with the quality of life of adolescents with thalassemia in Banyumas.
Concluison: The better family support, father^s education, mother^s education, family income, and not doing splenectomy,the better the quality of life adolescents with thalassemiain Banyumas.
Keywords: Thalassemia, Adolescents, PedsQL, Quality of Life
